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Monthly Archives: January 2008

Lost recipe – Peanut butter no bake cookies – where are you recipe?

January 31, 2008 – 5:15 pm

I am looking for a long lost recipe I got many years ago from one of my nutritionists. I think it was in an old CF Recipe book, maybe not. It was one of my favorite high calorie treats. Just wondering if anyone else may have it and can reunite me with my favorite no-bake [...]

By Salty | Posted in Life in General | Comments (2)

The future of the insulin pump

January 31, 2008 – 12:36 pm

After reading Amy’s Open Letter to Steve Jobs, over at Diabetes Mine, regarding the lack of I have come up with items I would love to see integrated into the insulin pump. Maybe some day these things will come to fruition! Maybe they would call it the iPump? hehe PDA one where I can store [...]

By Salty | Posted in Challenges, Cystic Fibrosis Related Diabetes, diabetes, insulin pump | Comments (0)

Who dictates my healthcare?

January 24, 2008 – 8:02 pm

Still in the throws of the appeal process, I sit and wait, and wonder how long it is going to take for me to get the simple things I need. I would just buy an insulin pump and a monitor now, with my own money, but I know that my insurance would try to use [...]

By Salty | Posted in Challenges, Cystic Fibrosis, Cystic Fibrosis Related Diabetes, diabetes, insulin pump | Comments (2)

The 5,000 calorie a day diet

January 21, 2008 – 8:02 pm

Imagine being stick thin, the “perfect” model body, AND being able to eat copious amounts of anything and everything you could stuff in your mouth. This is called the CF Diet. High fat, high calorie, no limitations. It sounds like a dream to some. But for me, it is a nightmare. Since my digestive system [...]

By Salty | Posted in Challenges, Cystic Fibrosis, Nutrition | Comments (12)

blah blah blah!

January 19, 2008 – 5:35 pm

I need to apologize to all of my friends and my constant blathering about my diabetes, insulin, future pump, CGM and my blog. I am just so excited to be learning all about it, I just can’t help but pass the info on! I hope I don’t sound like Charlie Brown’s teacher!!

By Salty | Posted in Life in General, Support | Comments (2)

“But you look healthy” – a daily frustration.

January 18, 2008 – 5:46 pm

Such frustrating words in my mind. But this is life with an invisible disability. Several in fact. Just before my last IV antibiotic tune-up I had an experience that made me so upset. I was out running errands with one of my friends. I was having a hard time breathing that night in the cold [...]

By Salty | Posted in Challenges, Life in General, Support | Comments (1)

DENIED! – Explained.

January 17, 2008 – 9:54 pm

I had to have my doctor translate the denial letters to me. I was denied the insulin pump because I do not have Type 1 diabetes. Which, they are right, I don’t. I have CF Related Diabetes. But I still NEED insulin. There are so few of us out there with CFRD I don’t think [...]

By Salty | Posted in Challenges, Cystic Fibrosis, Cystic Fibrosis Related Diabetes, diabetes, insulin pump | Comments (0)

DENIED! – Insurance issues.

January 16, 2008 – 11:55 am

I am not sure why, I will find out later today, but insurance has denied my request for an insulin pump and Continuous Glucose Monitor. I am not surprised about the CGM, but floored they denied me an insulin pump. Do they not realize I have diabetes? My A1c at last check was 9.0, three [...]

By Salty | Posted in Challenges, Cystic Fibrosis Related Diabetes, diabetes, insulin pump, Kidneys, Support | Comments (1)

Enough time in the day?

January 15, 2008 – 12:12 pm

I have a question for all of you chronic working women (and men). I am having to deal with more and more treatments and therapies as I get older. I am not finding enough time in the day to get it all done. How do you deal with working, treatments, therapies, and possibly a tiny [...]

By Salty | Posted in Challenges, Life in General, Support | Comments (0)

Thank you readers!

January 15, 2008 – 12:02 pm

I really appreciate each and everyone for reading my blog and passing it on. I would like to encourage you to make comments and to ask questions. As it is much more fun for everyone to have a conversation rather than sit through a lecture! No question is to silly or to small. We live [...]

By Salty | Posted in Support | Comments (0)