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“But you look healthy” - a daily frustration.

Such frustrating words in my mind. But this is life with an invisible disability. Several in fact.

Just before my last IV antibiotic tune-up I had an experience that made me so upset. I was out running errands with one of my friends. I was having a hard time breathing that night in the cold air. My lungs were really plugged up and the cold air kicked my asthma in to gear. It was one of my bad days.

As we were crossing the parking lot to enter one of the stores, my friend hurried in front of a truck that had politely stopped to let us pass. Now my friend, with clear and healthy lungs politely hurries across in front of the truck. Me on the other hand, with a large cramp in my side, from trying to keep up with my friend, tried to cross as quickly as I could. Which was not fast enough for the lady in the truck. I was greeted by her yelling “hurry up!” with frantic hand waving as if to push me across the street.

parking lot

I about cried. Obviously this lady has NO idea what I was going through, or that I was actually pushing myself to get out of her way as fast as my little lungs could take me. But in her mind I looked just fine and had no other reason to be slow except that I was lazy.

I am not the only one who experiences things like that. My aunt who’s body has Myasthenia Gravis has problems with this too. She looks just fine on the outside, but inside she is not. She is not lazy, her body won’t LET her move.

I wish this world was a little more patient and understanding and knew that everyone is not perfect.

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One Comment

  1. Whenever someone starts a sentence with me…

    “But you look great!”
    “But you don’t look sick!?!”
    “But you’re walking just find now!”

    They are in total denial of the truth. I give them one more chance. I reply,
    “Oh, I guess you didn’t hear or understand me…” and I proceed to describe my experience. If they are still in denial of my truth, my reality, I stop. They don’t want to understand, they don’t want to believe that life could really BE that challenging, that threatening, that scary.

    We are not complainers! We just want our reality to be understood. Why is that so hard to understand? Many times I’ve bit my tongue to keep from being just as rude as I want to reply, “Really? And you don’t look like an idiot!”
    –”Ant” Donlyn, Snowflake Warrior (Myastheniac)

    1. Donlyn on January 19th, 2008 at 2:18 pm

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