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Who dictates my healthcare?

Still in the throws of the appeal process, I sit and wait, and wonder how long it is going to take for me to get the simple things I need. I would just buy an insulin pump and a monitor now, with my own money, but I know that my insurance would try to use every excuse in the book not to reimburse me. So, I am not going to risk it. I will play their game of sit, wait, pray and hope that the person reviewing my files is in a great mood that day.

Dr J. is currently writing my appeal letter, she sounds hopeful. But she was hopeful before the denial too. She is my doctor, she knows my health best, and she feels that I would greatly benefit from a pump and a monitor. But, it is the financial health care system, who is in the business of making money (who can blame them!) and not in the business of taking care of the sick, who is making the decision about my health care. Sick and twisted if you ask me!

I will continue to struggle to get my blood sugar levels under control in the mean time, using old fashion ways. Wishing they would hurry up and grant me my wishes so I could go have sinus surgery. (maybe I am the weirdo wishing for surgery!).

Surgery with high blood sugar levels is very risky. Infected sinus drainage (CF is not a pretty disease) gets into my lungs and causes even more problems. A severely deviated septum is causing me to get infections in my sinuses about every three months. Sinus surgery would greatly improve my breathing, improving my life.

On a much happier note, I have discovered that improv-comedy is great respiratory therapy! hehe!

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2 Comments so far (Add 1 more)

  1. Hi Jesse,
    Yes I have an ENT specialist. I sent my mom to him for her last sinus surgery. He seems to be really good. Since her last surgery, after at least 20 years of not being able to smell, my mom can now smell upon occasion! She is so happy, even if it is stinky things she smells. At least now she has a chance of smelling smoke if the house is on fire!

    My CF clinic refers most of their patients to my ENT, so he is very knowledgeable about CF and the affects the sinuses/respiratory tract. He thinks that after the surgery my lung functions should improve too. What wonderful news!

    Hope you are doing well!

    1. aspen on January 31st, 2008 at 3:16 pm
  2. Aspen,

    I’ve had 6 sinus surgerys because of pollups and I had my septum fixed about 15 years ago. That was not fun, but it’s worth it. Do you have an ENT? I see my ENT once a month for sinus maintenance and haven’t needed surgery again for almost 4 years. It really helps to keep the drainage at a minimum.

    If you can stave off those pesky sinus infections, life gets much better. By the way, if you feel a sinus infection coming on, I found that sleeping in a chair for a couple of nights helps stave off the transfer into the lungs.

    I think I had enough observations at clinic today to make a post, but I dunno about starting a CF blog yet. We’ll see.

    2. Jesse Petersen on January 25th, 2008 at 8:46 am

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