I have been in constant contact, sending at least a half dozen emails a day, with my clinic since this insurance company vs. the insulin pump fight started. We are currently working on a second, and final, appeal.

I spoke with the insurance co, they believe their independent reviewers are up to date with all the latest info in their field. I approximate 4,800 people in the US have CFRD. How is every single endocrine specialist supposed to know the ins and outs of such a rare disease? My insurance “assured” me that their independent reviewers are up to date with diabetes (no mention of CFRD). Why am I not convinced?! Ha!

I am able to request my next appeal to be done by a specialist in CFRD, but I will not be assured that my request will be granted.

Learned something new today thanks to Dr. J. I have a normal c-peptide level, which the insurance is using to deny my claim. If I had an abnormal c-peptide level, this would diagnose Type 1 (low level) or Type 2 (high level) diabetes. CFRD is neither, which is why my levels are “normal” and why I have CFRD and not Type 1 or Type 2.

I want to send out a special “thank you” to my CF clinic nurse. I can’t thank her enough for all the help and support she has given me over the years. I know I am getting the best care because she always goes over and beyond to make sure of it.

This is an interesting fact. Colorado is a state that allows health insurance discrimination. A healthy friend of mine, “healthy” with exception to a small shoulder pain he had last year (which was treated with a cortisone shot and has not reappeared), was denied an individual policy because of the shoulder issue. So I really doubt I could get a self-insured policy in this state. I may have to consider something else.

Just started shaking, dizzy, and slightly confused, feeling like I am in a tunnel…. checked sugars, 74… off to go get a snack! Yum yum chocolate covered pretzels here I come!

P.S. Thanks for your support Jesse!!