“You are a very strong person” I am told time and time again. How could this be so, as my body seems to be falling apart?!

I believe the answer is because I came to terms with my own mortality a very long time ago. It has given me a better understanding of how precious life is. Also how extremely important love, caring and sharing is. Every day I wake up still breathing is truly a blessing. According to the facts and figures when I was born, I was not supposed to live this long. But here I am! I am strong because I understand that there isn’t a single “perfect” person here on earth. No matter how hard everyone strives, no one can be perfect. We all have flaws. We all have challenges.

The lack of love, understanding and caring in this world is what frustrates me more than my own health challenges. Call me an old school hippie if you want. Kids are no longer to give each other hugs in school. Adults continuously argue about petty issues. Some strive so hard to “keep up with the Joneses” rather than lend a neighbor a helping hand. I am just as guilty as the next person, so who am I to judge, but I am trying to change my ways. I want to make the most of my life and leave a positive footprint after I leave. This I see is my biggest challenge.

Dealing with two invisible diseases is something that not many people can even wrap their brain around. I feel very lucky that through my blog I have met some very amazing people who are dealing with the frustrations that I am. This blog has a strange way of comforting me. I am not the only one with these issues. We have been able to share thoughts, feelings, and maybe even improved our health care by sharing treatment ideas. Hopefully this is a little piece of positivity, and change, I am sharing with the world.