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Monthly Archives: April 2008

Latest scoop on the pump

I think it is time for an update on the case of the un-insurance-covered insulin pump and continuous glucose monitor system.
My doctor said we are finally ready to pursue my final appeal of insurance coverage for an insulin pump and continuous glucose monitor. It took a while to find and compile research studies since [...]

First Monday Challenge 1.0

Come on people! Don’t make me do this all by myself! Let’s support each other in improving our health! (okay, I’m sorry, that is a little too cheery for a Monday morning, I agree). Today I start the first step of my new healthy “diet” or shall we say ‘lifestyle change’? This [...]

Changes with living longer

I had something strange happen to me the other day in clinic. I walked by some of the rooms on the way to mine and I saw Cystic Fibrosis patients with gray hair! I had NEVER ever seen that before! It was kind of a weird realization that I may get gray [...]

It’s so good to be free!

Today I feel like the Scarecrow in the Wizard of Oz just after Dorthy helps him down off of his watch-post. Dancing around with so little grace. “I am freeee!” I am so happy to be off the IVs and have that painful PICC line out. This weekend was so busy, [...]

The SECRET is out!

My secret is out and will be broadcast tomorrow night at the Photo Martini Club gallery showing in Denver. Tomorrow night’s show will feature the topic of Secrets. My dear friend Alex is a member of this club and has shown off his talents by featuring me and my invisible “secret” diseases, Cystic [...]

The day is FINALLY here!

I am soooo happy to be getting rid of my PICC line today! I am done with IVs!!!
Wish I could show you my happy dance! I do my happy dance every Friday while my co-workers laugh their arses off at me! Today get’s an extra little rump shake! YEAAA!!!

Friends

I think I am going to have Johnny dedicate this to my ex-special-someone on Friday… Johnny is going to be so disappointed I am afraid. *sigh* Love ya Johnny!
[youtube=http://www.youtube.com/watch?v=WChliDKHiEI&hl=en]
Ok, now that I have aired my thoughts… I am feeling much better!
Stay tuned for your regularly scheduled programming…. (or how ever that goes)

Down in the dumps

It has been a little while since I last posted. Thought I would check in and let you all know things are going well. I am almost done with my IVs, it feels like I have been on them foreeever! That’s a sign I must be feeling better! I did a night-time room [...]

Minor setback

Thank you my dearest friend for calling me from the Roger Clyne concert! You know who you are! I am so sad I had to miss the show, but it was the sweetest thing you could have done while I was at home infusing my nightly IV dose! I love you!
I had to miss [...]

Frustrations…

This week I have gone back to work. My brain is fried from all the medications and lack of sleep, so please forgive me if I ramble on. As well I am going nuts because my life is revolving around nothing more than my health. I just hate that. [...]