This week I have gone back to work. My brain is fried from all the medications and lack of sleep, so please forgive me if I ramble on. As well I am going nuts because my life is revolving around nothing more than my health. I just hate that. I am bored out of my mind, sick and tired of taking care of myself and am starved for some social interaction.

Let’s see…. where to start…. update… What I have been doing: 3 IV antibiotics 3x/day (takes about 1.5-2 hrs each time), occasional saline fluids in the evenings (takes 3-4 hrs) to rehydrate and physical chest therapy twice a day (should be doing it 4x, but since I have to work there is no time).

I now OWE my work sick time and am not looking forward to owing them even more when I get my sinus surgery in a few months. This just doesn’t make me comfortable.

Wednesday was my two week checkup. Breathing tests went from 54% to 57%, really not much improvement for the extent of my care over the past few weeks. So now I will be doing IVs for one more week. Having horrible side affects (a different drug cocktail than I am use to).

Added Prednisone (steroid) today to calm down inflammation. (lungs are really tight and wheezy). I hope this works and maybe it will help me get rid of some of the plugs on my right side, giving me back some more of my function, but this is only a guess. Prednisone is going to make my blood sugars go insane, which may cause MORE dehydration.

My current dehydration has caused another blocked intestine (oh such a lovely pain), which luckily I caught early, so things will be moving a little better with yet, more drugs.

I also have thrush in my mouth which is caused from a combo of diabetes, infection and antibiotics. Soooo… one more pill to take! ahaha. I never had this before and had no idea what was going on. It felt, and looked like, like I drank something that burnt my entire mouth inside. Had trouble eating & drinking anything. but all is almost better now.

The drugs are making me nauseous. My blood pressure has been crazy low 80/54 the other day, making me really woozy. I HAVE to have sinus surgery in the next month or two. My sinuses are still really messed up (moderate-severe sinusitis and severely deviated septum). I saw my CT-scan and it does look pretty wicked! My sinuses are really stuffy and causing my ear to fill with fluid. Causing more off balance stuff. I swear! I am a danger to myself! haha (one thing, I haven’t yet lost my sense of humor!)

Oh, one good thing, my blood oxygen levels are going up. I no longer need oxygen to exercise. Doc is ordering a night time test to see how I do on room air while sleeping, so maybe I won’t have to be on o2 at night anymore. (although it helps me sleep sooooo much better!)

I should have just made a bullet pointed list! LOL Sorry if this is TMI, but I have only talked to doctors and nurses (and my parents) for the past few weeks… they get all the gory details!

darn…. that’s a lot! Work has been okay, although I wish I took off the past week, then I probably wouldn’t have to do this third week of IVs. But I am super in the hole with vacation time. They say that it is not a problem…. but what that means, I am scared to find out since they can’t have my first born. the gas station already took that from me.

I am feeling super overwhelmed. I sit here with not enough time in the day to do all I need to do to take care of myself. I am no longer afraid to ask my friends and family for help, but I am having a hard time figuring out what they CAN help with. Any suggestions out there?

With all that is going on, I am at least starting to feel better FINALLY. Getting my oxygen levels up has helped tremendously. Hope all is well in your neck of the woods!