Comments on: Various gunky topics http://saltyandsweet.org/2008/05/12/various-gunky-topics/ Daily life fighting Cystic Fibrosis and Cystic Fibrosis Related Diabetes. Thu, 08 Sep 2011 19:43:29 +0000 hourly 1 http://wordpress.org/?v=3.3.1 By: Stoo http://saltyandsweet.org/2008/05/12/various-gunky-topics/comment-page-1/#comment-503 Stoo Wed, 22 Jul 2009 16:40:43 +0000 http://saltyandsweet.wordpress.com/?p=217#comment-503 I have read a lot of good stuff about the vest. I am surprised that it didn't work quite well for both of you. When I told my doc about trying the Frequencer, he didn't quite like the idea of me spending thousand dollars on a device of which the effectiveness wasn't clinically proved even if the only thing I wanted to do was to try it for 14 effing days. They almost insisted that I shouldn't buy it even though I kept repeating that I only wanted to TRY it. Damn. I don't think they are going to like the idea of the vest. I have read a lot of good stuff about the vest. I am surprised that it didn’t work quite well for both of you.

When I told my doc about trying the Frequencer, he didn’t quite like the idea of me spending thousand dollars on a device of which the effectiveness wasn’t clinically proved even if the only thing I wanted to do was to try it for 14 effing days. They almost insisted that I shouldn’t buy it even though I kept repeating that I only wanted to TRY it. Damn. I don’t think they are going to like the idea of the vest.

]]> By: Wendy http://saltyandsweet.org/2008/05/12/various-gunky-topics/comment-page-1/#comment-118 Wendy Sun, 25 May 2008 03:12:20 +0000 http://saltyandsweet.wordpress.com/?p=217#comment-118 I have two kids with CF... we used to have two vests because my kids felt like it worked. We thought our insurance would cover the second vest, but they didn't, so we had to send it back. I am trying to figure out how to get another one more cheaply than through insurance. I knew another CF parent who got a machine through ebay, but I haven't seen any there. ... does anyone want to sell theirs?? I have two kids with CF… we used to have two vests because my kids felt like it worked. We thought our insurance would cover the second vest, but they didn’t, so we had to send it back. I am trying to figure out how to get another one more cheaply than through insurance. I knew another CF parent who got a machine through ebay, but I haven’t seen any there. … does anyone want to sell theirs??

]]> By: Jesse Petersen http://saltyandsweet.org/2008/05/12/various-gunky-topics/comment-page-1/#comment-116 Jesse Petersen Thu, 15 May 2008 12:14:15 +0000 http://saltyandsweet.wordpress.com/?p=217#comment-116 The Pickle is a flow valve device that you blow into hard and it oscillates your airways from the inside out. It's green and about the size of a medium cucumber, so they call it the Pickle for short. You nailed it: it's the nose-tingling and the ants crawling under my shirt that I can't stand. By the way, your photo shoot looked like a lot of fun. You sure can't beat the scenery you have around there, although a lot of people like our scenery in FL, too. The Pickle is a flow valve device that you blow into hard and it oscillates your airways from the inside out. It’s green and about the size of a medium cucumber, so they call it the Pickle for short.

You nailed it: it’s the nose-tingling and the ants crawling under my shirt that I can’t stand.

By the way, your photo shoot looked like a lot of fun. You sure can’t beat the scenery you have around there, although a lot of people like our scenery in FL, too.

]]> By: Salty http://saltyandsweet.org/2008/05/12/various-gunky-topics/comment-page-1/#comment-115 Salty Wed, 14 May 2008 14:35:26 +0000 http://saltyandsweet.wordpress.com/?p=217#comment-115 Jesse, I am slightly afraid to ask, but what is the Pickle? I totally agree with your vest tickling comment. Aside from it generally not helping to get the crud out, it makes the skin on my nose tickle and crawl. It is the most annoying feeling! LOL I bet a lot of us agree that laughter is definitely the best medicine for cystics sometimes! hehehe Jesse, I am slightly afraid to ask, but what is the Pickle?

I totally agree with your vest tickling comment. Aside from it generally not helping to get the crud out, it makes the skin on my nose tickle and crawl. It is the most annoying feeling! LOL

I bet a lot of us agree that laughter is definitely the best medicine for cystics sometimes! hehehe

]]> By: Jesse Petersen http://saltyandsweet.org/2008/05/12/various-gunky-topics/comment-page-1/#comment-114 Jesse Petersen Wed, 14 May 2008 11:27:41 +0000 http://saltyandsweet.wordpress.com/?p=217#comment-114 Hey, Aspen! I was debating on whether or not to comment on this one, but what the hey? I HATE the VEST. I've only used it about 5 times in my life. It tickles, tingles, and is generally uncomfortable. It's gone from being a piece of furniture to the closet, back out to sitting next to our end table. When it did make me cough, it was no better than watching The Three Stooges or using the Pickle device. I used to use Flutter, but the Pickle is clearly better. Hey, Aspen!

I was debating on whether or not to comment on this one, but what the hey?

I HATE the VEST. I’ve only used it about 5 times in my life. It tickles, tingles, and is generally uncomfortable. It’s gone from being a piece of furniture to the closet, back out to sitting next to our end table.

When it did make me cough, it was no better than watching The Three Stooges or using the Pickle device. I used to use Flutter, but the Pickle is clearly better.

]]>