Sometime earlier this year we discovered I need supplemental oxygen when I sleep and also during exercise. And well, when I say exercise, I don’t mean aerobics class… no way am I fit enough for that. But I am noticing that I get quite winded even on short walks. There are things that affect my [...]
I find this extremely important. I received this email (see below) and excuse me for just copy and pasting, but the Cystic Fibrosis Foundation, and myself, and others with CF, need your help.
Personally, I am waiting with baited breath for this treatment to hit the market. Inhaled Aztreonam, AZLI, was expected to be available this [...]
One of my old coworkers sent me a link to an NPR report he heard on the news today. This report hit hard at home for me. It is about a couple of families with children who have cystic fibrosis who are stuck in the middle, financially, much like myself. The costs of caring for [...]
So, I have this friend… well, maybe she isn’t exactly a friend, but I grew up with her. We spent many days while we were growing up in the hospital together. Both having CF, sharing the trials, tribulations and frustrations of living with this disease. Having wheelchair races, playing chubby bunnies at 1am until the [...]
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