Comments on: I need this treatment. Please help tell the FDA. http://saltyandsweet.org/2008/11/21/i-need-this-treatment-please-help-tell-the-fda/ Daily life fighting Cystic Fibrosis and Cystic Fibrosis Related Diabetes. Sat, 05 Jun 2010 21:05:51 +0000 http://wordpress.org/?v=2.9.2 hourly 1 By:   Oh my! Did she say the “f” word?! — Salty and Sweet http://saltyandsweet.org/2008/11/21/i-need-this-treatment-please-help-tell-the-fda/comment-page-1/#comment-397   Oh my! Did she say the “f” word?! — Salty and Sweet Wed, 07 Jan 2009 00:04:49 +0000 http://saltyandsweet.org/?p=393#comment-397 [...] closed up to my tonsils the size of golf balls, it was amazing to me. (I am giving credit to the Inhaled Aztreonam study which I started only 28 days ago and adding a new asthma [...] [...] closed up to my tonsils the size of golf balls, it was amazing to me. (I am giving credit to the Inhaled Aztreonam study which I started only 28 days ago and adding a new asthma [...]

]]> By: Jesse Petersen http://saltyandsweet.org/2008/11/21/i-need-this-treatment-please-help-tell-the-fda/comment-page-1/#comment-343 Jesse Petersen Mon, 24 Nov 2008 19:23:29 +0000 http://saltyandsweet.org/?p=393#comment-343 I will be sure to keep you posted on its effectiveness. I was told in September that I was a candidate and they would call me. They never called, but the study representative signed me up Friday when I went to clinic at Tampa General. The meds should arrive in 5-9 business days and I'll go in to pick them up, along with a new e-Zflow. I've been off Tobi for a couple of years, and I think that might have caught up with me a bit because I've been doing Colistine instead. This is the big hope for my resistance table, since I'm resistant to all forms of Cipro and respond best to tobramyacin, especially by IV, which is NOT the way to go for me. Thanks for sending this e-mail our way. I will be sure to keep you posted on its effectiveness. I was told in September that I was a candidate and they would call me. They never called, but the study representative signed me up Friday when I went to clinic at Tampa General.

The meds should arrive in 5-9 business days and I’ll go in to pick them up, along with a new e-Zflow. I’ve been off Tobi for a couple of years, and I think that might have caught up with me a bit because I’ve been doing Colistine instead.

This is the big hope for my resistance table, since I’m resistant to all forms of Cipro and respond best to tobramyacin, especially by IV, which is NOT the way to go for me.

Thanks for sending this e-mail our way.

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