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Oh my! Did she say the “f” word?!

Over the last week my tonsils were giving me heck.  So I stopped by my CF clinic yesterday to get some good ol’ Levoquin (antibiotic).  As tradition goes, as with any clinic visit, I did the typical blow into the machine and it spits out a number thing.  To my surprise it seemed really easy.  Usually I have fits of asthma that really makes it tough despite all the meds I take.  I asked the therapist if I could get a copy of the results and she kind of was reluctant to give them to me, which was weird, it is totally normal for us cystics to want our own proof.  But my eyes bugged out when I saw the number.  This was the best test I have had in YEEEEARS.  I haven’t been feeling all that well recently, probably my emotions getting the best of me.  Considering my throat was partially closed up to my tonsils the size of golf balls, it was amazing to me. (I am giving credit to the Inhaled Aztreonam study which I started only 28 days ago and adding a new asthma drug).

Holy smoke folks!  I never thought I would have this conversation with my docs ever.  Partially because I was reluctant to ask, because I didn’t want to get my hopes up, until I found that special someone to share my life with (yea, I am giving up on that for the time being, until time wears away some more horrible memories).  But my doc said some of the most wonderful things to me.  If I am able to get my lung function just a little bit better, which is very possible and should be easy to do, and keep my diabetes under control, my doc believes I could live a very long and healthy life, which may even include… having a FAMILY!  Oh my! She said the “f” word!  I never really considered this to be an option for me.  So hearing it makes my mind boggle!

I don’t know… maybe doc has been reading my blog and found out that I have been down in the dumps and wanted to lift my spirits about my future… who knows. (by the way, I don’t mind if you read my stuff docs and nurses.. if you are reading this)  :)   But still.  A FAMILY is something that I had never seriously dreamed of.  Much like the people I have dated, I always invisioned myself to have the “expired” stamp on my forehead.  These people have done hell to part of my self-esteem, which you could probably read into in some of my recent posts.  Making me feel like I am less worthy than someone without my genetic mutations.  I look back to see my past wasted with tears caused by people who looked up CF on the web and deemed me lesser than thou.  They hurt me because they were scared of some outdated data.  They were scared I may die (well DUH!).  It is horrible.  And despite this happy news my doctor spoke to me, the tears I have spilled over the years over what others have told me… it is very sad to realize that this cycle will go on, people believing the internet over my word, or even my doctor’s word.  I cry more tears knowing that even though I have been given a blessing of sorts, I may not ever be able to have it just becuase of this damn internet.

What brings us together can also push us apart.

But she still said the “f” word!  :)

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11 Comments so far (Add 1 more)

  1. Thanks so much for all the support everyone! It is really an amazing thought that one of my life long wishes may actually have a chance of happening. Unfortunately though, I won’t do it without the love and support of a wonderful life-partner…. which I am finding I really have no control over that… luck so rarely seems to be on my side when it comes to dating.

    N1303K – Welcome! Oh boy an FEV1 of 100%?! Now that would be something. I am so far from that it isn’t funny, but at least I am still doing ok according to my doctors. As for setting the dating bar too low… any advice on how to fix that? I thought I was fairly picky in my “requirements”, but I am apparently doing something wrong.

    1. Salty on February 11th, 2009 at 12:32 pm
  2. Hey,

    I am a fellow CFer from Toronto, Ont. I want to encourage you to “keep dreaming”. The most important part of living with a life limiting disease is ensuring that you don’t allow the disease to limit you!

    Keep your head up!

    All the best

    2. Erick Bauer on January 23rd, 2009 at 2:42 pm
  3. Hi there
    I’m new on this blog, but I can totaly understand your excitement. I’m a CF patient and I know what it’s like to have no expectations for the future. I’m happy for you your lung function got better. Congrats.

    3. CF treatments on January 18th, 2009 at 7:09 am
  4. Great to hear your getting “heathier” than you’ve been in years. It seems like your diabetes is staying under control between your diet and insulin pump, and anything that increases your lung function has to be appreciated.

    While you and I face different physical challenges in life, we both face the same problem of people judging us on what they’ve heard, read, or just assume. Keep your spirits up and dreams alive, you’re going to be a great catch for someone ;) ,

    4. Josh on January 8th, 2009 at 10:44 pm
  5. I found your blog why looking for info on CF, diabetes, and oral meds vs. insulin. I found out I am diabetic last spring and am trying to learn some more about it, especially because my CF docs are not happy that my endocrinologist has me on oral meds, but I must say it is much easier than the shots. Anyway I am 39 and had a child at age 30. Best thing I did and my health was stable throughout the pregnancy. I grew up being told I could not have children but that was not the case at all. Do some research, from what I can tell more and more the research is saying that having a child does not cause harm.

    5. Fellow CFRDer on January 8th, 2009 at 1:49 pm
  6. i like THAT “f” word! so glad to hear some good news for a change.

    6. landileigh on January 7th, 2009 at 10:37 pm
  7. You ARE worthy! Far more than many others.
    I’d like to give a whack-up-the-side-of-the-head to all who have hurt you. You are the strongest, most amazing person I have ever met. Put that on the internet you CF info sites!!!!

    7. Ant Donlyn on January 7th, 2009 at 11:34 am
  8. It seems to me, as a newcomer to your blog, upon reading your descriptions of relationships that did not work out, that you have set the bar too low. Much as you are reaching for an FEV 1 of 100 (or whatever you deem excellent), you deserve someone who will love you so much that it won’t matter to your beloved whether you live another week or another 5,000 weeks. Someone like that won’t need to surf the web to read all those gloomy and outdated assessments of life with CF — because the real truth of it all is in the heart and won’t be found in someone’s disquisition on mucus.

    Greetings from snowy Vermont.

    8. N1303K on January 7th, 2009 at 6:24 am
  9. Congrats on the great numbers! And the “F” word! :)

    9. Darby on January 7th, 2009 at 6:15 am
  10. WOHOO!!!!!!!!!!!!!!!!!!!!!! I hope that you are able to fill that dream :)

    HUGS <3

    10. Amy on January 6th, 2009 at 6:37 pm
  11. Sounds like that is a HUGE dream for you! Congratulations! I wonder if doctors realize the life-altering ramifications of a simple sentence from them. I’m betting a lot of them do. It’s a blast to give people such good news.

    Congrats again!

    11. Scott Pantall on January 6th, 2009 at 6:35 pm

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