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Monthly Archives: August 2009

What in the world?

August 24, 2009 – 6:42 pm

Just a few days ago I received a comment from Nathan on my post called Putting all our hope in one basket.  Nathan was so kind to inform me/us of a trial of a drug, Miglustat, being studied outside of the US.  Here are a few links he gave me:
Actelion – Miglustat (Actelion is a [...]

By Salty | Posted in Cystic Fibrosis, treatments | Comments (1)

Seriously?! – Dear FDA,… comment reply

August 16, 2009 – 10:36 pm

I started to reply to this comment within my last post Seriously?! – Dear FDA,… but I after I got going I figured it would be best if I address the comments with a new post…
Here’s the comment:
Dear Salty:
I think you’re being a little unfair to the FDA. They made a decision the CF community didn’t [...]

By Salty | Posted in Challenges, Cystic Fibrosis, treatments | Comments (4)

Seriously?! – Dear FDA,…

August 14, 2009 – 6:24 pm

Seriously?!
Dear FDA,
This is getting absolutely ridiculous.  For almost 8 months now I have been part of an Expanded Access Program, which has been going on for two full years now, for the clinical study of the drug Aztreonam delivered via a nebulizer.  To explain a little about this study, Aztreonam is an antibiotic which has [...]

By Salty | Posted in Challenges, Cystic Fibrosis, treatments | Comments (3)