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Author Archives: Salty

GREAT News!!!

First New Inhaled Anti-Pseudomonal Therapy Approved for Cystic Fibrosis Patients in More Than 10 Years
U.S. Food and Drug Administration Approves Cayston(R) (Aztreonam for Inhalation Solution) for the Improvement of Respiratory Symptoms in Cystic Fibrosis Patients with Pseudomonas Aeruginosa
http://www.gilead.com/pr_1393831
For all my buddies who couldn’t qualify for the study or the ‘compassionate care’ program, it’s your [...]

Back in the saddle again

Hi y’all!
I survived the swine flu. I honestly have no idea how I did though. It was horrendous. I was so weak, I couldn’t even lift a bottle of Poweraide Zero to my lips and needed a straw. Since then it has been hard to get back on my feet again.  I’ve had two rounds [...]

oink oink

My dear readers, I have wanted so much to write up some more posts, but unfortunately I’ve been hit by the flu. Yep, the flu. Not 100% sure if it was of the swine flavor, but either way it took me down for a while. Now thanks to that lovely illness I’m doing a [...]

What in the world?

Just a few days ago I received a comment from Nathan on my post called Putting all our hope in one basket.  Nathan was so kind to inform me/us of a trial of a drug, Miglustat, being studied outside of the US.  Here are a few links he gave me:
Actelion – Miglustat (Actelion is a [...]

Seriously?! – Dear FDA,… comment reply

I started to reply to this comment within my last post Seriously?! – Dear FDA,… but I after I got going I figured it would be best if I address the comments with a new post…
Here’s the comment:
Dear Salty:
I think you’re being a little unfair to the FDA. They made a decision the CF community didn’t [...]

Seriously?! – Dear FDA,…

Seriously?!
Dear FDA,
This is getting absolutely ridiculous.  For almost 8 months now I have been part of an Expanded Access Program, which has been going on for two full years now, for the clinical study of the drug Aztreonam delivered via a nebulizer.  To explain a little about this study, Aztreonam is an antibiotic which has [...]

What to say?…

I have sat down several times to write a new blog post, but I have been having some severe writer’s block.  Partially because I think that diabetes is becoming so second nature to me, that I don’t really think about it all that much.  That I hope is a good thing to hear for those [...]

Putting all our hope in one basket.

There has been a ton of hype going around the Cystic Fibrosis circles about a new drug developed by Vertex Pharmaceuticals.  Actually there are two drugs being studied, the names get confusing because the names are numbers (VX-770 and VX-809) to fix genetic mutations which are also numbers (G551D and delF508).  Both drugs are oral [...]

Spring cleaning time

It’s spring cleaning time here at Salty and Sweet.  If I am at all successful with this, S&S will have a whole new look, and will be easier to view.  Keeping all of the existing content though.  Just undergoing a minor (and much needed) facelift.  So far I was able to get rid of the [...]

Back! Finally!

Hi everyone! I thank you all for your words of support in getting my blog rolling again. With blogging about health topics there is a fine line between personal and way too personal. I’ve been doing well (for a change, knock on wood!). Doing well also includes getting my arse out in the dating game [...]