February 23, 2010 – 8:53 am
First New Inhaled Anti-Pseudomonal Therapy Approved for Cystic Fibrosis Patients in More Than 10 Years
U.S. Food and Drug Administration Approves Cayston(R) (Aztreonam for Inhalation Solution) for the Improvement of Respiratory Symptoms in Cystic Fibrosis Patients with Pseudomonas Aeruginosa
http://www.gilead.com/pr_1393831
For all my buddies who couldn’t qualify for the study or the ‘compassionate care’ program, it’s your [...]
January 12, 2010 – 1:54 pm
Hi y’all!
I survived the swine flu. I honestly have no idea how I did though. It was horrendous. I was so weak, I couldn’t even lift a bottle of Poweraide Zero to my lips and needed a straw. Since then it has been hard to get back on my feet again. I’ve had two rounds [...]
August 16, 2009 – 10:36 pm
I started to reply to this comment within my last post Seriously?! – Dear FDA,… but I after I got going I figured it would be best if I address the comments with a new post…
Here’s the comment:
Dear Salty:
I think you’re being a little unfair to the FDA. They made a decision the CF community didn’t [...]
August 14, 2009 – 6:24 pm
Seriously?!
Dear FDA,
This is getting absolutely ridiculous. For almost 8 months now I have been part of an Expanded Access Program, which has been going on for two full years now, for the clinical study of the drug Aztreonam delivered via a nebulizer. To explain a little about this study, Aztreonam is an antibiotic which has [...]
I have sat down several times to write a new blog post, but I have been having some severe writer’s block. Partially because I think that diabetes is becoming so second nature to me, that I don’t really think about it all that much. That I hope is a good thing to hear for those [...]
February 11, 2009 – 8:49 pm
Also known as the HbA1c, hemoglobin A1c, or Glycosylated (or glycated) hemoglobin test. This is a blood test that measures the average blood glucose levels over the past 2-3 months. Glucose can bind to the hemoglobin which is found in the red blood cells. This causes some sort of modification of the molecule in the [...]
February 5, 2009 – 6:32 pm
That is how my life has seemed to be over the past few months… ok, maybe past few years. After my last oh so awesome post, not even a day later, I got some bad health juju that kicked me on my arse which is why I have been on the ‘downlow’ (or what ever [...]
January 6, 2009 – 6:00 pm
Over the last week my tonsils were giving me heck. So I stopped by my CF clinic yesterday to get some good ol’ Levoquin (antibiotic). As tradition goes, as with any clinic visit, I did the typical blow into the machine and it spits out a number thing. To my surprise it seemed really easy. [...]
December 29, 2008 – 6:21 pm
As usual at this time of year I tend to get a bit overly emotional. To blame, at least partially, is the lack of sunshine in my life both literally and figuratively. As the end of the year closes it is hard not to reflect back on the passing time. This year has definitely been [...]
December 12, 2008 – 6:38 pm
So if you haven’t figured it out already, Cystic Fibrosis is not a pretty disease. If it is an icky bodily function, CF makes it worse. I was recently asked by a CF friend about CF gas. We cystics have it, a lot of it, and it surely does not smell like roses. On my [...]
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