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category archive listing Category Archives: Challenges

Oxygen finally

December 5, 2008 – 10:55 am

Just a quick update. Wendesday evening the oxygen delivery fella FINALLY showed up on my doorstep. I finally have some small-ish bottles to use when I exercise away from my home.  THANK YOU DELIVERY DUDE!  (although you gave me cannulas that could fit a horse and my nose is smaller than a child’s… guess I [...]

By Salty | Also posted in Cystic Fibrosis | Comments (0)

How I survived Thanksgiving.

December 3, 2008 – 6:15 pm

I hope ya all had a very happy thanksgiving.  Thanksgiving is one of my most favorite holidays.  Of course that is because of all the food!!! YUMMMMY! Dealing with Diabetes and the copious amounts of food that the holidays bring is a very difficult thing to balance.  I thought I would share a few tips [...]

By Salty | Also posted in continuous glucose monitor, Cystic Fibrosis, Cystic Fibrosis Related Diabetes, diabetes, Holiday, Life in General, Nutrition | Comments (0)

Still waaaaiting…

December 3, 2008 – 12:14 pm

Darn the oxygen company.  They were supposed to drop off some moderately sized oxygen bottles last week.  The delivery fella called around 9:30pm and left a message that it would be later than he expected.  Wellll by 9:30 I had already been passed out after some allergies got the best of me and I had [...]

By Salty | Also posted in Cystic Fibrosis | Comments (0)

Home oxygen

November 26, 2008 – 12:39 pm

Sometime earlier this year we discovered I need supplemental oxygen when I sleep and also during exercise.  And well, when I say exercise, I don’t mean aerobics class… no way am I fit enough for that. But I am noticing that I get quite winded even on short walks.  There are things that affect my [...]

By Salty | Also posted in airway clearance, Cystic Fibrosis | Comments (0)

I need this treatment. Please help tell the FDA.

November 21, 2008 – 5:15 pm

I find this extremely important.  I received this email (see below) and excuse me for just copy and pasting, but the Cystic Fibrosis Foundation, and myself, and others with CF, need your help. Personally, I am waiting with baited breath for this treatment to hit the market.  Inhaled Aztreonam, AZLI, was expected to be available [...]

By Salty | Also posted in Cystic Fibrosis, Support | Comments (2)

Friendly frustration and hope for the future

November 4, 2008 – 7:10 pm

So, I have this friend… well, maybe she isn’t exactly a friend, but I grew up with her.  We spent many days while we were growing up in the hospital together.  Both having CF, sharing the trials, tribulations and frustrations of living with this disease. Having wheelchair races, playing chubby bunnies at 1am until the [...]

By Salty | Also posted in Cystic Fibrosis, insurance, Life in General, Support | Comments (1)

One heck of a month

October 31, 2008 – 6:03 pm

October has been crazy.  While I was getting settled in at my new job, mother nature threw me for a loop again.  Yet another cold landed me back in the hospital.  I sat for two weeks with gurgly lungs taking oral Levaquin and nebulized Tobi with no relief.  Finally the nurses at work convinced me [...]

By Salty | Also posted in Cystic Fibrosis, Invisible Disease, Life in General, Tune-up | Comments (2)

My Blackberry

September 14, 2008 – 7:35 am

How on earth did a Crackberry help me in gaining control of my diabetes?  Yea it sounds strange, but I was always out of luck when I was out and about and I was hungry.  I admit I have a horrible memory and am horrible with remembering how many carbs are in foods but now [...]

By Salty | Also posted in Cystic Fibrosis Related Diabetes, diabetes | Comments (0)

The evil high fructose corn syrup

September 13, 2008 – 7:23 am

Before I moved in with mom I had nearly eliminated high fructose corn syrup from my diet at the suggestion of my doctor.  At first I didn’t believe that it would make me feel better, but I am sure that was just my resistance to change and convenience.  This is difficult to do, but it [...]

By Salty | Also posted in Cystic Fibrosis, Cystic Fibrosis Related Diabetes, Nutrition | Comments (0)

My insulin pump

September 12, 2008 – 7:02 am

This tool is priceless for people (with CFRD) with the crazy nutritional needs of CF.  When I sit down to eat, I never know how much I will eat because my tummy is so moody.  I can bolus a conservative amount of insulin at the beginning of the meal and if I happen to eat [...]

By Salty | Also posted in continuous glucose monitor, Cystic Fibrosis Related Diabetes, diabetes, insulin pump | Comments (0)