February 23, 2010 – 8:53 am
First New Inhaled Anti-Pseudomonal Therapy Approved for Cystic Fibrosis Patients in More Than 10 Years
U.S. Food and Drug Administration Approves Cayston(R) (Aztreonam for Inhalation Solution) for the Improvement of Respiratory Symptoms in Cystic Fibrosis Patients with Pseudomonas Aeruginosa
http://www.gilead.com/pr_1393831
For all my buddies who couldn’t qualify for the study or the ‘compassionate care’ program, it’s your [...]
January 12, 2010 – 1:54 pm
Hi y’all!
I survived the swine flu. I honestly have no idea how I did though. It was horrendous. I was so weak, I couldn’t even lift a bottle of Poweraide Zero to my lips and needed a straw. Since then it has been hard to get back on my feet again. I’ve had two rounds [...]
August 24, 2009 – 6:42 pm
Just a few days ago I received a comment from Nathan on my post called Putting all our hope in one basket. Nathan was so kind to inform me/us of a trial of a drug, Miglustat, being studied outside of the US. Here are a few links he gave me:
Actelion – Miglustat (Actelion is a [...]
August 16, 2009 – 10:36 pm
I started to reply to this comment within my last post Seriously?! – Dear FDA,… but I after I got going I figured it would be best if I address the comments with a new post…
Here’s the comment:
Dear Salty:
I think you’re being a little unfair to the FDA. They made a decision the CF community didn’t [...]
August 14, 2009 – 6:24 pm
Seriously?!
Dear FDA,
This is getting absolutely ridiculous. For almost 8 months now I have been part of an Expanded Access Program, which has been going on for two full years now, for the clinical study of the drug Aztreonam delivered via a nebulizer. To explain a little about this study, Aztreonam is an antibiotic which has [...]
There has been a ton of hype going around the Cystic Fibrosis circles about a new drug developed by Vertex Pharmaceuticals. Actually there are two drugs being studied, the names get confusing because the names are numbers (VX-770 and VX-809) to fix genetic mutations which are also numbers (G551D and delF508). Both drugs are oral [...]
February 12, 2009 – 8:24 pm
Here are a few other tests (by far not all of them) that are important in either the diagnosis of diabetes, or if you have diabetes they are good to have to keep tabs on things.
Random glucose test – This is usually a fingerprick, or done while draining your arm/body of blood for other tests. [...]
February 11, 2009 – 8:49 pm
Also known as the HbA1c, hemoglobin A1c, or Glycosylated (or glycated) hemoglobin test. This is a blood test that measures the average blood glucose levels over the past 2-3 months. Glucose can bind to the hemoglobin which is found in the red blood cells. This causes some sort of modification of the molecule in the [...]
February 10, 2009 – 7:46 pm
I was about to launch off in a review about an article I read online at the American Diabetes Association regarding two diagnostic tests for diabetes. But then I realized that it may be more important to give you a bit of a description of the tests before I go spouting off my opinion of [...]
February 6, 2009 – 6:38 pm
Having been to the doctor’s about a billion times in the past few months I have learned a few new things about diabetes that I want to share. I don’t know where I read it, somewhere said that folks with CFRD do not suffer the same complications as “regular” diabetics. This is just bullpuckey! I [...]
Category Archives: 
BlogoSquare