October 25, 2008 – 10:32 am
From the national cystic fibrosis conference going on in Florida this weekend. Frank Accurso is one of the ringleading researchers of Cystic Fibrosis (also my former childhood doctor and current boss). In the video below, as principle investigator, he speaks of an amazing new study drug, Vertex VX-770. This is not a cure, but it [...]
September 13, 2008 – 7:23 am
Before I moved in with mom I had nearly eliminated high fructose corn syrup from my diet at the suggestion of my doctor. At first I didn’t believe that it would make me feel better, but I am sure that was just my resistance to change and convenience. This is difficult to do, but it [...]
Yesterday I had an awesome doctor’s visit. My lungs are in decent shape (any time there is no decline it is awesome news!), my blood sugars look great (I owe it to my new insulin pump), I found out my insurance paid their part of my continuous glucose monitor…… wait… what???? Yep! I noticed online [...]
A lot of speculation has come about with my recent lay off.
It is quite a coincidence of how I was on IVs for three weeks twice (still went to work, with exception to the week I was IN the hospital), sinus surgery (one week out of work), insulin pump training class, along with all the [...]
I haven’t had a moment to think about posting more today. Like a hyperactive bunny rabbit (ok, bad analogy there), I have been checking in on the progress of another person with CF. “Pepe” a.k.a. Gina is a very well loved young woman in a head on fight for her life right now. [...]
On Tuesday I started using a new blood glucose meter. I have been using a FreeStyle Flash for several years and absolutely loved it (quite ticked to hear they are no longer making the Flash). In fact a few weeks ago I found a new feature on it that made me fall deeper [...]
I am finding the hardest part of diabetes is ‘remembering’.
I have to remember to check my blood glucose levels:
when I wake up
before every meal
two hours after every meal
before bed
sometimes before driving
sometimes before/after snacks
sometimes at 3 am to make sure I am not sinking into oblivion
every time I turn around
I have to remember to make sure [...]
Hi everyone! It has been a while since I last posted and so much has gone on. I warn you I am quite out of it, doped up on pain pills right now. Thursday afternoon I had my first ever sinus surgery to fix my severe chronic sinusitis. I think the [...]
Hehehe! I can’t wait to try these cookies! They sound heavenly! For the most part they stick to my high fructose corn syrup free diet (is there a better word than diet?). I will be replacing the brand name m&m’s with maybe something organic and fructose free if I can find [...]
Mom had surgery on Tuesday. She was supposed to be released from the hospital today, but she spiked a fever and her oxygen levels dropped. Turns out she has a lung infection.
I am a bit worried since my lung bugs are acting up again and I just saw her on [...]
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