February 5, 2009 – 6:32 pm
That is how my life has seemed to be over the past few months… ok, maybe past few years. After my last oh so awesome post, not even a day later, I got some bad health juju that kicked me on my arse which is why I have been on the ‘downlow’ (or what ever [...]
January 6, 2009 – 6:00 pm
Over the last week my tonsils were giving me heck. So I stopped by my CF clinic yesterday to get some good ol’ Levoquin (antibiotic). As tradition goes, as with any clinic visit, I did the typical blow into the machine and it spits out a number thing. To my surprise it seemed really easy. [...]
December 29, 2008 – 6:21 pm
As usual at this time of year I tend to get a bit overly emotional. To blame, at least partially, is the lack of sunshine in my life both literally and figuratively. As the end of the year closes it is hard not to reflect back on the passing time. This year has definitely been [...]
December 12, 2008 – 6:38 pm
So if you haven’t figured it out already, Cystic Fibrosis is not a pretty disease. If it is an icky bodily function, CF makes it worse. I was recently asked by a CF friend about CF gas. We cystics have it, a lot of it, and it surely does not smell like roses. On my [...]
December 5, 2008 – 10:55 am
Just a quick update. Wendesday evening the oxygen delivery fella FINALLY showed up on my doorstep. I finally have some small-ish bottles to use when I exercise away from my home. THANK YOU DELIVERY DUDE! (although you gave me cannulas that could fit a horse and my nose is smaller than a child’s… guess I [...]
December 3, 2008 – 6:15 pm
I hope ya all had a very happy thanksgiving. Thanksgiving is one of my most favorite holidays. Of course that is because of all the food!!! YUMMMMY!
Dealing with Diabetes and the copious amounts of food that the holidays bring is a very difficult thing to balance. I thought I would share a few tips and [...]
December 3, 2008 – 12:14 pm
Darn the oxygen company. They were supposed to drop off some moderately sized oxygen bottles last week. The delivery fella called around 9:30pm and left a message that it would be later than he expected. Wellll by 9:30 I had already been passed out after some allergies got the best of me and I had [...]
November 26, 2008 – 12:39 pm
Sometime earlier this year we discovered I need supplemental oxygen when I sleep and also during exercise. And well, when I say exercise, I don’t mean aerobics class… no way am I fit enough for that. But I am noticing that I get quite winded even on short walks. There are things that affect my [...]
November 21, 2008 – 5:15 pm
I find this extremely important. I received this email (see below) and excuse me for just copy and pasting, but the Cystic Fibrosis Foundation, and myself, and others with CF, need your help.
Personally, I am waiting with baited breath for this treatment to hit the market. Inhaled Aztreonam, AZLI, was expected to be available this [...]
November 20, 2008 – 12:43 pm
One of my old coworkers sent me a link to an NPR report he heard on the news today. This report hit hard at home for me. It is about a couple of families with children who have cystic fibrosis who are stuck in the middle, financially, much like myself. The costs of caring for [...]
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