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category archive listing Category Archives: Cystic Fibrosis

Friendly frustration and hope for the future

November 4, 2008 – 7:10 pm

So, I have this friend… well, maybe she isn’t exactly a friend, but I grew up with her.  We spent many days while we were growing up in the hospital together.  Both having CF, sharing the trials, tribulations and frustrations of living with this disease. Having wheelchair races, playing chubby bunnies at 1am until the [...]

By Salty | Also posted in Challenges, insurance, Life in General, Support | Comments (1)

One heck of a month

October 31, 2008 – 6:03 pm

October has been crazy.  While I was getting settled in at my new job, mother nature threw me for a loop again.  Yet another cold landed me back in the hospital.  I sat for two weeks with gurgly lungs taking oral Levaquin and nebulized Tobi with no relief.  Finally the nurses at work convinced me [...]

By Salty | Also posted in Challenges, Invisible Disease, Life in General, Tune-up | Comments (2)

One of my heros..

October 25, 2008 – 10:32 am

From the national cystic fibrosis conference going on in Florida this weekend.  Frank Accurso is one of the ringleading researchers of Cystic Fibrosis (also my former childhood doctor and current boss).  In the video below, as principle investigator, he speaks of an amazing new study drug, Vertex VX-770. This is not a cure, but it [...]

By Salty | Comments (1)

The evil high fructose corn syrup

September 13, 2008 – 7:23 am

Before I moved in with mom I had nearly eliminated high fructose corn syrup from my diet at the suggestion of my doctor.  At first I didn’t believe that it would make me feel better, but I am sure that was just my resistance to change and convenience.  This is difficult to do, but it [...]

By Salty | Also posted in Challenges, Cystic Fibrosis Related Diabetes, Nutrition | Comments (0)

It is about time!

July 24, 2008 – 10:42 am

Yesterday I had an awesome doctor’s visit.  My lungs are in decent shape (any time there is no decline it is awesome news!), my blood sugars look great (I owe it to my new insulin pump), I found out my insurance paid their part of my continuous glucose monitor……  wait… what???? Yep! I noticed online [...]

By Salty | Also posted in Cystic Fibrosis Related Diabetes, diabetes, insulin pump, Life in General | Comments (0)

Laid off

July 14, 2008 – 1:39 pm

A lot of speculation has come about with my recent lay off. It is quite a coincidence of how I was on IVs for three weeks twice (still went to work, with exception to the week I was IN the hospital), sinus surgery (one week out of work), insulin pump training class, along with all [...]

By Salty | Also posted in Challenges, Life in General | Comments (0)

Miss my Flash

June 21, 2008 – 9:38 am

On Tuesday I started using a new blood glucose meter. I have been using a FreeStyle Flash for several years and absolutely loved it (quite ticked to hear they are no longer making the Flash). In fact a few weeks ago I found a new feature on it that made me fall deeper in love [...]

By Salty | Also posted in Cystic Fibrosis Related Diabetes, diabetes, insulin pump, insurance | Comments (0)

Remembering diabetes

June 13, 2008 – 7:05 am

I am finding the hardest part of diabetes is ‘remembering’. I have to remember to check my blood glucose levels: when I wake up before every meal two hours after every meal before bed sometimes before driving sometimes before/after snacks sometimes at 3 am to make sure I am not sinking into oblivion every time [...]

By Salty | Also posted in Challenges, Cystic Fibrosis Related Diabetes, diabetes, Life in General | Comments (0)

Recovering

May 31, 2008 – 4:46 pm

Hi everyone! It has been a while since I last posted and so much has gone on. I warn you I am quite out of it, doped up on pain pills right now. Thursday afternoon I had my first ever sinus surgery to fix my severe chronic sinusitis. I think the surgery went well. Doc [...]

By Salty | Also posted in Life in General | Comments (3)

Friday cookies!

May 16, 2008 – 5:55 pm

Hehehe! I can’t wait to try these cookies! They sound heavenly! For the most part they stick to my high fructose corn syrup free diet (is there a better word than diet?). I will be replacing the brand name m&m’s with maybe something organic and fructose free if I can find them in the grocery [...]

By Salty | Also posted in Nutrition, Recipe | Comments (0)