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category archive listing Category Archives: Invisible Disease

Emotional Rant

As usual at this time of year I tend to get a bit overly emotional.  To blame, at least partially, is the lack of sunshine in my life both literally and figuratively.  As the end of the year closes it is hard not to reflect back on the passing time.  This year has definitely been [...]

World Diabetes Day

Go hug all of your diabetes friends today!

One heck of a month

October has been crazy.  While I was getting settled in at my new job, mother nature threw me for a loop again.  Yet another cold landed me back in the hospital.  I sat for two weeks with gurgly lungs taking oral Levaquin and nebulized Tobi with no relief.  Finally the nurses at work convinced me [...]

The SECRET is out!

My secret is out and will be broadcast tomorrow night at the Photo Martini Club gallery showing in Denver. Tomorrow night’s show will feature the topic of Secrets. My dear friend Alex is a member of this club and has shown off his talents by featuring me and my invisible “secret” diseases, Cystic [...]

Frustrations…

This week I have gone back to work. My brain is fried from all the medications and lack of sleep, so please forgive me if I ramble on. As well I am going nuts because my life is revolving around nothing more than my health. I just hate that. [...]

Inner strength

“You are a very strong person” I am told time and time again. How could this be so, as my body seems to be falling apart?!

I believe the answer is because I came to terms with my own mortality a very long time ago. It has given me a better understanding of how [...]

Dealings with feelings

I have known about my Cystic Fibrosis for as long as I can remember, and having CF has had a lot of positive impacts on my life and personality. I have met a lot of amazing people through this disease. It has made me very strong and has made me want more than [...]

Salty and Sweet T-shirts and more!

I have started up a store to help raise awareness of Cystic Fibrosis and Cystic Fibrosis Related Diabetes and maybe raise some funds to help with my medical expenses in the process. All proceeds will help offset the cost of my insulin pump and continuous glucose monitor system (co-pay and deductible if insurance pays, [...]

Gasp, Wheeze, Choke

Today is one of those “bad” days. I left for work feeling great. Did a breathing treatment just before I headed out the door. I felt clean and clear. The snow was coming down in big beautiful flakes. Even the cold didn’t seem to bother my asthma. It started [...]

Don’t Assume

Don’t Assume (Author Unknown)
Don’t assume that because I look well that I feel well. Looks can be
very deceiving. Many days I look great but feel terrible.
Don’t say, “I know how you feel.” No one knows how anyone else feels.
We all have varying thresholds of pain, and pain cannot be measured.
Don’t tell me about your Aunt [...]