January 6, 2009 – 6:00 pm
Over the last week my tonsils were giving me heck. So I stopped by my CF clinic yesterday to get some good ol’ Levoquin (antibiotic). As tradition goes, as with any clinic visit, I did the typical blow into the machine and it spits out a number thing. To my surprise it seemed really easy. [...]
December 29, 2008 – 6:21 pm
As usual at this time of year I tend to get a bit overly emotional. To blame, at least partially, is the lack of sunshine in my life both literally and figuratively. As the end of the year closes it is hard not to reflect back on the passing time. This year has definitely been [...]
November 21, 2008 – 5:15 pm
I find this extremely important. I received this email (see below) and excuse me for just copy and pasting, but the Cystic Fibrosis Foundation, and myself, and others with CF, need your help.
Personally, I am waiting with baited breath for this treatment to hit the market. Inhaled Aztreonam, AZLI, was expected to be available this [...]
November 4, 2008 – 7:10 pm
So, I have this friend… well, maybe she isn’t exactly a friend, but I grew up with her. We spent many days while we were growing up in the hospital together. Both having CF, sharing the trials, tribulations and frustrations of living with this disease. Having wheelchair races, playing chubby bunnies at 1am until the [...]
Saturday night was The Aspen Fund gala, held to help raise money for my medical expenses. What an evening and what a turn out! I want to thank every single person who attended. You each hold a special place in my heart.
Aside from seeing a lot of my amazing friends (and making a [...]
Yesterday, Sunday, (ok, it took me a few days to post this ) I took my pop to the Taste of Fort Collins where we saw one of my most favorite musicians preform. Angie Stevens! with her band The Beautiful Wreck (what a kick ar$e name!). Angie holds the honor of Best Singer/Songwriter [...]
Mom had surgery on Tuesday. She was supposed to be released from the hospital today, but she spiked a fever and her oxygen levels dropped. Turns out she has a lung infection.
I am a bit worried since my lung bugs are acting up again and I just saw her on [...]
Happy May! Congress has officially named MAY Cystic Fibrosis Awareness month. Yippee!!
So this month maybe you can do one of more of these things:
* Send out a mass email sending people to this site to show them what life is like for someone with Cystic Fibrosis.
* Participate in the national Great Strides walks happening [...]
April 16, 2008 – 11:01 pm
I think I am going to have Johnny dedicate this to my ex-special-someone on Friday… Johnny is going to be so disappointed I am afraid. *sigh* Love ya Johnny!
[youtube=http://www.youtube.com/watch?v=WChliDKHiEI&hl=en]
Ok, now that I have aired my thoughts… I am feeling much better!
Stay tuned for your regularly scheduled programming…. (or how ever that goes)
April 16, 2008 – 12:31 pm
It has been a little while since I last posted. Thought I would check in and let you all know things are going well. I am almost done with my IVs, it feels like I have been on them foreeever! That’s a sign I must be feeling better! I did a night-time room [...]
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