December 29, 2008 – 6:21 pm
As usual at this time of year I tend to get a bit overly emotional. To blame, at least partially, is the lack of sunshine in my life both literally and figuratively. As the end of the year closes it is hard not to reflect back on the passing time. This year has definitely been [...]
November 21, 2008 – 5:15 pm
I find this extremely important. I received this email (see below) and excuse me for just copy and pasting, but the Cystic Fibrosis Foundation, and myself, and others with CF, need your help.
Personally, I am waiting with baited breath for this treatment to hit the market. Inhaled Aztreonam, AZLI, was expected to be available this [...]
November 4, 2008 – 7:10 pm
So, I have this friend… well, maybe she isn’t exactly a friend, but I grew up with her. We spent many days while we were growing up in the hospital together. Both having CF, sharing the trials, tribulations and frustrations of living with this disease. Having wheelchair races, playing chubby bunnies at 1am until the [...]
I haven’t had a moment to think about posting more today. Like a hyperactive bunny rabbit (ok, bad analogy there), I have been checking in on the progress of another person with CF. “Pepe” a.k.a. Gina is a very well loved young woman in a head on fight for her life right now. [...]
Check out these pics from The Summer of Aspen benefit. They were taken by a very impressive photographer, Scott Ingram. Check out some of his other work while you are there. Here’s the link to the whole set of photos. (I am the blonde in the black floofy tank)
Angie Stevens and [...]
Photos coming soon!
Saturday night was The Aspen Fund gala at Jaz B Studios in Denver, held to help raise money for my medical expenses. What an evening and what a turn out! I want to thank every single person who attended. You each hold a special place in my heart.
Aside from seeing a [...]
Yesterday, Sunday, (ok, it took me a few days to post this :)) I took my pop to the Taste of Fort Collins where we saw one of my most favorite musicians preform. Angie Stevens! with her band The Beautiful Wreck (what a kick ar$e name!). Angie holds the honor of Best Singer/Songwriter by [...]
Mom had surgery on Tuesday. She was supposed to be released from the hospital today, but she spiked a fever and her oxygen levels dropped. Turns out she has a lung infection.
I am a bit worried since my lung bugs are acting up again and I just saw her on [...]
Happy May! Congress has officially named MAY Cystic Fibrosis Awareness month. Yippee!!
So this month maybe you can do one of more of these things:
* Send out a mass email sending people to this site to show them what life is like for someone with Cystic Fibrosis.
* Participate in the national Great Strides walks happening [...]
April 18, 2008 – 12:10 pm
My secret is out and will be broadcast tomorrow night at the Photo Martini Club gallery showing in Denver. Tomorrow night’s show will feature the topic of Secrets. My dear friend Alex is a member of this club and has shown off his talents by featuring me and my invisible “secret” diseases, Cystic [...]
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