Category Archives: treatmentsFirst New Inhaled Anti-Pseudomonal Therapy Approved for Cystic Fibrosis Patients in More Than 10 Years U.S. Food and Drug Administration Approves Cayston(R) (Aztreonam for Inhalation Solution) for the Improvement of Respiratory Symptoms in Cystic Fibrosis Patients with Pseudomonas Aeruginosa http://www.gilead.com/pr_1393831 For all my buddies who couldn’t qualify for the study or the ‘compassionate care’ program, [...]
Just a few days ago I received a comment from Nathan on my post called Putting all our hope in one basket. Nathan was so kind to inform me/us of a trial of a drug, Miglustat, being studied outside of the US. Here are a few links he gave me: Actelion – Miglustat (Actelion is [...]
I started to reply to this comment within my last post Seriously?! – Dear FDA,… but I after I got going I figured it would be best if I address the comments with a new post… Here’s the comment: Dear Salty: I think you’re being a little unfair to the FDA. They made a decision the [...]
Seriously?! Dear FDA, This is getting absolutely ridiculous. For almost 8 months now I have been part of an Expanded Access Program, which has been going on for two full years now, for the clinical study of the drug Aztreonam delivered via a nebulizer. To explain a little about this study, Aztreonam is an antibiotic [...]
There has been a ton of hype going around the Cystic Fibrosis circles about a new drug developed by Vertex Pharmaceuticals. Actually there are two drugs being studied, the names get confusing because the names are numbers (VX-770 and VX-809) to fix genetic mutations which are also numbers (G551D and delF508). Both drugs are oral [...]
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