Comments for Salty and Sweet http://saltyandsweet.org Daily life fighting Cystic Fibrosis and Cystic Fibrosis Related Diabetes. Thu, 08 Sep 2011 19:43:29 +0000 hourly 1 http://wordpress.org/?v=3.3.1 Comment on Other various tests for diabetes by Stacy Evandale http://saltyandsweet.org/2009/02/12/other-various-tests-for-diabetes/comment-page-1/#comment-786 Stacy Evandale Thu, 08 Sep 2011 19:43:29 +0000 http://saltyandsweet.org/?p=459#comment-786 Superlike this! You nailed it when you said your levels are good to keep tabs on! ~Stacy Superlike this! You nailed it when you said your levels are good to keep tabs on!

~Stacy

]]> Comment on What to say?… by sell diabetic test strips http://saltyandsweet.org/2009/07/17/what-to-say/comment-page-1/#comment-783 sell diabetic test strips Mon, 25 Jul 2011 22:48:05 +0000 http://saltyandsweet.org/?p=472#comment-783 My dad is pretty much the same way.. and I believe its the same with every illness.. taken serious the first few weeks, then it becomes second nature. Life is life lol. My dad is pretty much the same way.. and I believe its the same with every illness.. taken serious the first few weeks, then it becomes second nature. Life is life lol.

]]> Comment on Back in the saddle again by Genevieve http://saltyandsweet.org/2010/01/12/back-in-the-saddle-again/comment-page-1/#comment-779 Genevieve Thu, 10 Mar 2011 23:42:06 +0000 http://saltyandsweet.org/?p=499#comment-779 You are an amazing Woman, NEVER GIVE UP! I love your blog....I understand what it's like to suffer. I have a rare type of CF & Bronchiectasis. I've been a mess with complications that were dire since the birth of my beautiful daughter last August. I'm currently on 400mg of Avelox, 500mg of Vancomycin, steroids, nebulizer Tx, Vest therapy, Dilaudid, gah...you know the drill. Trying to keep up with the probiotic's, had CDIFF 3X since December due to all of the restricted antibiotics I've had since Hannah was born. So many complications. :( 3 invasive abdominal surgeries & 3 Blood transfusions in less than 2 months after a 72hr induction, 3 days of epidural that led to Emergency C-section, then Endometritis infection set in after bad C-section, tons of abscess filled my uterus. 12 JP drains, 16 CAT scans, almost died 4 times, 3 bouts of CDIFF, total abdominal hysterectomy, tons of adhesions and scar tissue. I too feel like I've been living in a fog. Thank God I NO longer have the PIC line or the drains, the nurses in my home. I just want to be a normal Mommy...all of us who suffer with Chronic illness def need to band together. I'll be praying for you! You are an amazing Woman, NEVER GIVE UP! I love your blog….I understand what it’s like to suffer. I have a rare type of CF & Bronchiectasis.

I’ve been a mess with complications that were dire since the birth of my beautiful daughter last August. I’m currently on 400mg of Avelox, 500mg of Vancomycin, steroids, nebulizer Tx, Vest therapy, Dilaudid, gah…you know the drill. Trying to keep up with the probiotic’s, had CDIFF 3X since December due to all of the restricted antibiotics I’ve had since Hannah was born. So many complications. :(

3 invasive abdominal surgeries & 3 Blood transfusions in less than 2 months after a 72hr induction, 3 days of epidural that led to Emergency C-section, then Endometritis infection set in after bad C-section, tons of abscess filled my uterus. 12 JP drains, 16 CAT scans, almost died 4 times, 3 bouts of CDIFF, total abdominal hysterectomy, tons of adhesions and scar tissue. I too feel like I’ve been living in a fog. Thank God I NO longer have the PIC line or the drains, the nurses in my home. I just want to be a normal Mommy…all of us who suffer with Chronic illness def need to band together. I’ll be praying for you!

]]> Comment on GREAT News!!! by Malachy Harvey http://saltyandsweet.org/2010/02/23/great-news/comment-page-1/#comment-775 Malachy Harvey Sat, 05 Jun 2010 21:05:51 +0000 http://saltyandsweet.org/?p=506#comment-775 Hi I'm Malachy-age 14-and I ,like you, have CF and CFRD! Huh, maybe I shouldn't have an exclamation mark there cause that is not something to be excited about...anyways my lung function is at 60% so I was not able to join the CF aztreonam trial like you were. I did however get it immediately after it came out and WOW it really did save years of my life. I used to get admitted every month or two to the hospital for two weeks because of my CF. I am going through my second portacath right now but because of the inhaled aztreonam (oh I also live with my mother now and before when I lived with my father I was depressed so my unhappy mind made me have a sicker body...anyways) I have stayed out of the hospital this entire year! I am resistant to all oral antibiotics except Colistin-and now aztreonam-so when I get sick I usually have to go in. Now I am healthy because of this new antibiotic. Oh and I help with the CFF to raise money for CF and I also work on the comittee. I heard about a new drug called Vertex- uh oh wait I forgot the number its like Vertex-178 or something like that, anyways the drug is supposed to correct the mutation in CF and is in phase II clinical trials and is showing promising results; I am told it will be out in 2013. I also read about the migulastat, however, and now I wonder if there is already a cure but in the hands of Europe, why would the FDA not allow it over here? Hopefully either drug will cure CF and will come out soon! Oh I also read that you were have some problems with CFRD. I used to get high sugars in the 300's and 500's when I was on prednisone but now at most I get to the 200's now. I got better with CFRD when I received an insulin pump. I have a minimed medtronic insulin pump and it is amazing because of how well I am able to control my diabetes, oh and there are also a lot of cool features (there is also a sensor to track your sugars 24/7 but I would wait for them to perfect it first and it cost $350 a month!). Here's the link if you're interested: http://www.minimed.com/pumptherapy/index.html . I highly recommend it if you do not already have one. I was not able to read all of your posts, so maybe you do already have one. I am glad there are other people out there who are not afraid to talk about my CF, I have 4 siblings with CF and it seems like everyone but me is in denial of it. Sorry about the long post, I was going to email you but when I clicked the email link it went to microsoft outlook and I couldn't figure out how to use it. I do have to say, too, how amazing and organized your website is! I never thought about a CF blog website, and the title is great too! I figured out what the salty part was about but not the sweet part until I read you "about me" page. Well email me back please, it would be nice to talk to someone else about this stuff. Hi I’m Malachy-age 14-and I ,like you, have CF and CFRD! Huh, maybe I shouldn’t have an exclamation mark there cause that is not something to be excited about…anyways my lung function is at 60% so I was not able to join the CF aztreonam trial like you were. I did however get it immediately after it came out and WOW it really did save years of my life. I used to get admitted every month or two to the hospital for two weeks because of my CF. I am going through my second portacath right now but because of the inhaled aztreonam (oh I also live with my mother now and before when I lived with my father I was depressed so my unhappy mind made me have a sicker body…anyways) I have stayed out of the hospital this entire year! I am resistant to all oral antibiotics except Colistin-and now aztreonam-so when I get sick I usually have to go in. Now I am healthy because of this new antibiotic. Oh and I help with the CFF to raise money for CF and I also work on the comittee. I heard about a new drug called Vertex- uh oh wait I forgot the number its like Vertex-178 or something like that, anyways the drug is supposed to correct the mutation in CF and is in phase II clinical trials and is showing promising results; I am told it will be out in 2013. I also read about the migulastat, however, and now I wonder if there is already a cure but in the hands of Europe, why would the FDA not allow it over here? Hopefully either drug will cure CF and will come out soon! Oh I also read that you were have some problems with CFRD. I used to get high sugars in the 300′s and 500′s when I was on prednisone but now at most I get to the 200′s now. I got better with CFRD when I received an insulin pump. I have a minimed medtronic insulin pump and it is amazing because of how well I am able to control my diabetes, oh and there are also a lot of cool features (there is also a sensor to track your sugars 24/7 but I would wait for them to perfect it first and it cost $350 a month!). Here’s the link if you’re interested: http://www.minimed.com/pumptherapy/index.html . I highly recommend it if you do not already have one. I was not able to read all of your posts, so maybe you do already have one. I am glad there are other people out there who are not afraid to talk about my CF, I have 4 siblings with CF and it seems like everyone but me is in denial of it. Sorry about the long post, I was going to email you but when I clicked the email link it went to microsoft outlook and I couldn’t figure out how to use it. I do have to say, too, how amazing and organized your website is! I never thought about a CF blog website, and the title is great too! I figured out what the salty part was about but not the sweet part until I read you “about me” page. Well email me back please, it would be nice to talk to someone else about this stuff.

]]> Comment on Back in the saddle again by liking http://saltyandsweet.org/2010/01/12/back-in-the-saddle-again/comment-page-1/#comment-774 liking Tue, 25 May 2010 08:06:03 +0000 http://saltyandsweet.org/?p=499#comment-774 Glad you recovered, and in any case, after getting better Glad you recovered, and in any case, after getting better

]]> Comment on What in the world? by Pete http://saltyandsweet.org/2009/08/24/what-in-the-world/comment-page-1/#comment-773 Pete Wed, 05 May 2010 16:35:15 +0000 http://saltyandsweet.org/?p=494#comment-773 check out http://www.cysticfibrosis.org.au/ this is our national site for australia, has a research link on thehome page if ur still interested in what researh is happening in other countries. hope you find our aussie site interesting pete check out http://www.cysticfibrosis.org.au/
this is our national site for australia, has a research link on thehome page if ur still interested in what researh is happening in other countries.
hope you find our aussie site interesting
pete

]]> Comment on Theory of CF Gas by Great Taste No Pain http://saltyandsweet.org/2008/12/12/theory-of-cf-gas/comment-page-1/#comment-772 Great Taste No Pain Wed, 28 Apr 2010 04:05:28 +0000 http://saltyandsweet.org/?p=436#comment-772 Geat Post,completely different topic,make me understand,There is a lot of good information provided in the link Thanks A Lot Geat Post,completely different topic,make me understand,There is a lot of good information provided in the link Thanks A Lot

]]> Comment on GREAT News!!! by Chris Allen http://saltyandsweet.org/2010/02/23/great-news/comment-page-1/#comment-670 Chris Allen Wed, 10 Mar 2010 19:21:14 +0000 http://saltyandsweet.org/?p=506#comment-670 Thank you for this information. I hope it helps more than just me. Have a great day!!! Chris Kitchen Scales Thank you for this information. I hope it helps more than just me. Have a great day!!!

Chris
Kitchen Scales

]]> Comment on GREAT News!!! by Stephanie Jewett, RN http://saltyandsweet.org/2010/02/23/great-news/comment-page-1/#comment-657 Stephanie Jewett, RN Mon, 01 Mar 2010 16:42:49 +0000 http://saltyandsweet.org/?p=506#comment-657 Great news and interesting blog! Stephanie Great news and interesting blog! Stephanie

]]> Comment on Back in the saddle again by Kristin http://saltyandsweet.org/2010/01/12/back-in-the-saddle-again/comment-page-1/#comment-649 Kristin Tue, 02 Feb 2010 19:47:46 +0000 http://saltyandsweet.org/?p=499#comment-649 Glad to hear that you recovered! Hope that you are feeling stronger these days! Glad to hear that you recovered! Hope that you are feeling stronger these days!

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