Yesterday was a great day.  I had such a good visit with the docs, they almost didn’t know what to do with me since I had such a rough go for the past 8 months.  Doc thinks I should be good for a while now, especially since I have been so good with my treatments.

I stopped by mom’s after my appointment to spread the happiness and we had a great dinner and did a little grocery shopping where both of our bills ended up the exact same amount, but we got totally different things.  That was a little erie. When we left, we saw the most beautiful rainbows. My camera phone didn’t do it any justice.

Here’s what the letter says:
“This appeal was reviewed by an independent external consultant, Board Certified in Internal Medicine with a Sub Specialty Certificate in Endocrinology Diabetes & Metabolism….
… Although the patient has met the criteria of being on on intensified insulin therapy program, and has a hemoglobin A1C of greater than 7%, there is no documentation to support low endogenous levels in the member. Her C-peptide level is within normal limits, which is not unexpected, since cystic fibrosis is associated with impaired glucose tolerance rather than primarily decreased insulin production.”

Now, I am quite confused. I thought that CFRD was caused because of decreased insulin production because the pancreas is damaged and not able to produce enough insulin to keep blood glucose at safe levels? Could their “expert” be wrong?!

(-sarcastic comment warning-) I am wondering if the independent reviewer believes that I am overweight (5′5″ 107lbs) and should control his assumption of “Type 2″ diabetes by dieting. OH PLEASE!!

Note: I do NOT have Type 1 OR Type 2 diabetes. I have CF Related Diabetes. It is a whole different bear all it’s own.

Here is the denial for the continuous glucose monitor:

“The continuous glucose monitor was denied again because it “is still considered experimental and investigational, with the therapeutic benefit yet to be proven in large-scale long-term studies. … continuous glucose monitoring system is considered experimental / investigational / unproven and is not in accordance with generally accepted standards of medical practice at he the present time, it would not be considered medically necessary.”

Does any one have any comments or suggestions about how to refute this claim??

I have found out that my insurance, GreatWest Healthcare, is notorious for denying coverage for insulin pumps. Unfortunately I can not switch my insurance policy, as it is the only one offered by my employer.