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I need this treatment. Please help tell the FDA.

November 21, 2008 – 5:15 pm

I find this extremely important.  I received this email (see below) and excuse me for just copy and pasting, but the Cystic Fibrosis Foundation, and myself, and others with CF, need your help. Personally, I am waiting with baited breath for this treatment to hit the market.  Inhaled Aztreonam, AZLI, was expected to be available [...]

By Salty | Posted in Challenges, Cystic Fibrosis, Support | Comments (2)

Awareness

May 1, 2008 – 7:29 am

Happy May! Congress has officially named MAY Cystic Fibrosis Awareness month. Yippee!! So this month maybe you can do one of more of these things: * Send out a mass email sending people to this site to show them what life is like for someone with Cystic Fibrosis. * Participate in the national Great Strides [...]

By Salty | Posted in Challenges, Cystic Fibrosis, Life in General, Support | Comments (2)